MARC details
| 000 -LEADER |
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| fixed length control field |
04241cam a2200505Mi 4500 |
| 001 - CONTROL NUMBER |
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| control field |
on1019662315 |
| 003 - CONTROL NUMBER IDENTIFIER |
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| control field |
OCoLC |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
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| control field |
20220920105404.0 |
| 006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS |
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| fixed length control field |
m o d |
| 007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION |
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| fixed length control field |
cr |n|---||||| |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
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| fixed length control field |
180113s2018 enk o 000 0 eng d |
| 015 ## - NATIONAL BIBLIOGRAPHY NUMBER |
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| National bibliography number |
GBB7L3363 |
| Source |
bnb |
| 016 7# - NATIONAL BIBLIOGRAPHIC AGENCY CONTROL NUMBER |
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| Record control number |
018593278 |
| Source |
Uk |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| International Standard Book Number |
178450680X |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| International Standard Book Number |
9781784506803 |
| Qualifying information |
(electronic bk.) |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
|---|
| International Standard Book Number |
9781785923463 (paperback) |
| 029 1# - OTHER SYSTEM CONTROL NUMBER (OCLC) |
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| OCLC library identifier |
AU@ |
| System control number |
000062621919 |
| 029 1# - OTHER SYSTEM CONTROL NUMBER (OCLC) |
|---|
| OCLC library identifier |
UKMGB |
| System control number |
018593278 |
| 035 ## - SYSTEM CONTROL NUMBER |
|---|
| System control number |
(OCoLC)1019662315 |
| Canceled/invalid control number |
(OCoLC)1019658613 |
| -- |
(OCoLC)1019722188 |
| 037 ## - SOURCE OF ACQUISITION |
|---|
| Stock number |
JessicaKingsleyPublishers9781784506803 |
| Source of stock number/acquisition |
Ingram Content Group |
| 037 ## - SOURCE OF ACQUISITION |
|---|
| Stock number |
09A4599B-4249-45F2-9407-F52FD59C2DDE |
| Source of stock number/acquisition |
OverDrive, Inc. |
| Note |
http://www.overdrive.com |
| 040 ## - CATALOGING SOURCE |
|---|
| Original cataloging agency |
EBLCP |
| Language of cataloging |
eng |
| Description conventions |
pn |
| Transcribing agency |
EBLCP |
| Modifying agency |
YDX |
| -- |
UAB |
| -- |
MERUC |
| -- |
IDB |
| -- |
OCLCQ |
| -- |
OCLCO |
| -- |
LVT |
| -- |
OCLCF |
| -- |
UKAHL |
| -- |
UKMGB |
| -- |
N$T |
| -- |
TEFOD |
| -- |
OCLCO |
| 100 1# - MAIN ENTRY--PERSONAL NAME |
|---|
| Personal name |
Langton-Gilks, Sacha. |
| Relator term |
author |
| 245 10 - TITLE STATEMENT |
|---|
| Title |
Follow the child : |
| Remainder of title |
planning and having the best end of life care for your child / |
| Statement of responsibility, etc. |
Sacha Langton-Gilks |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
|---|
| Place of publication, distribution, etc. |
London : |
| Name of publisher, distributor, etc. |
Jessica Kingsley Publishers, |
| Date of publication, distribution, etc. |
2018. |
| 300 ## - PHYSICAL DESCRIPTION |
|---|
| Extent |
234 pages : |
| Other physical details |
illustrations ; |
| Dimensions |
22 cm |
| 520 8# - SUMMARY, ETC. |
|---|
| Summary, etc. |
A child or young person with a terminal illness needs the best possible end of life care plan. This work will help guide families through the entire process, giving information about available support, what questions you should ask and how to care for your child at home. |
| Expansion of summary note |
Drawing on her family's own experiences and those of other parents facing the death of a child from illness or a life-limiting condition, Sacha Langton-Gilks explains the challenges, planning, and conversations that can be expected during this traumatic period. Practical advice such as how to work with the healthcare professionals, drawing up an Advance Care Plan, and how to move care into the home sit alongside tender observations of how such things worked in her own family's story. The book also includes a template person-centred planning document, developed by experts in the field. Empowering and reassuring, this book will help families plan and ensure the best possible end-of-life care for a child or young person. Grief in this book is specifically anticipatory grief, that is, loss before death, and therefore not intended to assist those who have lost a child. The author is not religious and her ambiguity about faith will be familiar to many families living in Ireland: "my family are in various stages of lapsed Church of England (Protestant). We lamely uphold the broad outlines of the Christian year and both the state primary and secondary schools, where our children attend and I teach, are Church of England." This book documents a British experience (with some input from a parent from the US, who did make faith based decisions, so these chapters may be particularly helpful to readers who practice a faith), so there may be some discrepancies between services as discussed and services available in Ireland. The author's son died at home, which was his choice, but the book features accounts from parents whose children died in hospitals and hospices are also included. His death was cancer-related, but includes accounts from other parents whose children had a variety of diagnoses: Dandy-Walker malformation/syndrome, cerebral palsy, seizures, musculoskeletal and congenital abnormalities, metachromatic leukodystrophy, Krabbe's leukodystrophy, a child who was deprived of oxygen at birth, and parents who lost a baby.<br/><br/>Audience: Adult caregivers, Professionals |
| 588 0# - SOURCE OF DESCRIPTION NOTE |
|---|
| Source of description note |
Print version record. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Children and death. |
| 650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Terminal care. |
| 650 #1 - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Grief |
| 9 (RLIN) |
443 |
| 653 ## - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Loss |
| 653 ## - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Death of a chlid |
| 653 ## - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Dying |
| 653 ## - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Disability |
| 655 #4 - INDEX TERM--GENRE/FORM |
|---|
| Genre/form data or focus term |
Electronic books. |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
|---|
| Source of classification or shelving scheme |
Dewey Decimal Classification |
| Koha item type |
Book |