Bibliography, pages 285 - 295.

The child's funeral / Erica Brown -- Counselling support / Erica Brown -- The financial impact of caring / Erica Brown -- Children's developmental understanding and emotional response to death and dying / Erica Brown -- The impact of life-limiting illness on the family / Erica Brown -- Continuing bonds / Erica Brown -- Working with siblings of life-limited children / Erica Brown -- Grandparent support / Erica Brown -- Religious, cultural, secular, and spiritual aspects of care / Erica Brown -- Post mortem, organ donation, and tissue retention / Erica Brown -- The education of the life-limited child / Erica Brown -- Transition from paediatric palliative care to adult services / Erica Brown -- Acknowledging staff stress and providing support / Erica Brown -- Maintaining the quality of care / Ann Smallman -- The role of research and development in children's hospices / Erica Brown

The historical background of paediatric palliative care / Erica Brown -- Working collaboratively / Brian Warr -- Assessment of needs and models of care / Ann Smallman -- Managing children's pain / Erica Brown -- The end of life phase of care / Erica Brown -- Administrative and practical requirements when a child dies / Brian Warr

Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.

Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.

This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.