000 03878cam a2200457 c 4500
001 ocn836520903
003 OCoLC
005 20220919105411.0
006 a||||er|||| 001 0
007 ta
008 070221s2007 enka 001 0 eng d
010 _a 2007022289
016 7 _a168465191
_2DE-101
016 7 _a013-67286
_2Uk
020 _a9781843101819 (paperback)
_q(pbk)
029 0 _aGBVCP
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029 1 _aDEBSZ
_b391060724
035 _a(OCoLC)836520903
040 _aGBVCP
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_dOCLCQ
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_dOCLCF
_dOCLCQ
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_dDEHBZ
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100 1 _aBrown, Erica
_eauthor
245 1 0 _aSupporting the child and the family in paediatric palliative care /
_cErica Brown with Brian Warr. Foreword by Sheila Shribman
260 _aLondon :
_bJessica Kingsley Publishers,
_c2007
300 _a304 pages :
_c24 cm
500 _aBibliography, pages 285 - 295.
500 _aThe child's funeral / Erica Brown -- Counselling support / Erica Brown -- The financial impact of caring / Erica Brown -- Children's developmental understanding and emotional response to death and dying / Erica Brown -- The impact of life-limiting illness on the family / Erica Brown -- Continuing bonds / Erica Brown -- Working with siblings of life-limited children / Erica Brown -- Grandparent support / Erica Brown -- Religious, cultural, secular, and spiritual aspects of care / Erica Brown -- Post mortem, organ donation, and tissue retention / Erica Brown -- The education of the life-limited child / Erica Brown -- Transition from paediatric palliative care to adult services / Erica Brown -- Acknowledging staff stress and providing support / Erica Brown -- Maintaining the quality of care / Ann Smallman -- The role of research and development in children's hospices / Erica Brown
500 _aThe historical background of paediatric palliative care / Erica Brown -- Working collaboratively / Brian Warr -- Assessment of needs and models of care / Ann Smallman -- Managing children's pain / Erica Brown -- The end of life phase of care / Erica Brown -- Administrative and practical requirements when a child dies / Brian Warr
520 _aSupporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.
650 0 _aPalliative treatment.
650 0 _aTerminally ill children
_xCare.
650 0 _aTerminally ill children
_xFamily relationships.
650 0 _aTerminally ill children
_xMedical care.
650 0 _aFamilies
_xHealth and hygiene.
700 1 _aWarr, Brian,
_eAuthor.
942 _2ddc
_cG
999 _c244
_d244